- Care Fully
- Posts
- Change is the only constant and advocacy is a vital tool.
Change is the only constant and advocacy is a vital tool.

Hi there!
I’m Erna, the author of Care Fully.
My caregiver journey started over 20 years ago, when I was 21 years old. As a newly minted college graduate, my life was just beginning. I had no idea how to deal with the ups, downs, and in-betweens of caregiving for my Mother.
Care Fully is a play on words. The questions I am asked and the questions I still have drive each issue of this newsletter.
We “care fully” by balancing our needs as a caregivers with those we provide care for. My goal is to offer up experiences and information to support your caregiving needs.
If this edition was forwarded to you, please sign up for your own copy here. And, if you’re looking for ideas to spotlight or support caregiving in your company, reach out to me at [email protected].
Today, we’re chatting about:
US healthcare spend.
Caregiver events.
Double-duty caregiving.
Keeping the “sick” away.

DO YOU KNOW?
How much was US healthcare spend in 2024? Do you have a number in mind? If you haven’t heard, let me be the first to share. Are you ready?
US healthcare spend in 2024 reached 5.3 trillion dollars! According to the Centers for Medicare and Medicaid Services, this total was driven by “utilization and more complex services as opposed to pricing increases.”
When asked for more details about this number, a statistician responded, “Prices are a factor. They’re part of the equation. But non-price factors are the driver.” In other words, the type and frequency of care is a major contributor to this total.
After all, healthcare expenses more than double between the ages of 70 and 90.
These numbers are hard to process. Healthcare costs remain on the rise, even when access and quality of care seem to be diminishing.
Reading this article reminds us (as if we could forget) the importance of advocacy, especially for older adults. Every healthcare interaction matters and you are the vital “communications bridge between loved ones and a medical team.”

EVENTS TO NOTE
Below are a few webinars to join if your schedule allows.
Beyond 9 to 5: Facilitating Good Jobs for People with Unpredictable Schedules (This one is happening at 2pm ET today.)

DOUBLE DUTY CAREGIVING
When asked the difference between caring for a patient and family member, one double-duty caregiver shared, “It really hit me between the eyes. I thought I was always the nurse. I always felt like I was helping not only the patient, but the caregiver, make that transition from hospital to home. And I did a good job. But what I realized is that caregivers have a whole different set of needs that I had no idea about, and you don’t learn that in nursing school or medical school. You learn about the disease; you’ll learn about the patient; you learn about the medication, but you never learn about the person going home.”
There is nothing like walking in the shoes of the person you are trying to help. It sheds light on all of the things that aren’t said. In the case of double-duty caregivers, those who are both paid and unpaid caregivers, it becomes very clear how complex the situation becomes when the patient and caregiver are in their own environment.
And, this is why this statement requires more emphasis. “If we don’t take care of the caregivers, what we have from the medical side is frequent readmissions and complications, because that patient depends very, almost 100% on that caregiver to keep them safe and healthy.”
Informal/unpaid caregivers are the backbone of care. As I’ve mentioned in previous newsletters, we play a significant role in managing the care of our loved ones. This is the case today and in the near term considering the challenges healthcare continues to face.

A WORD FROM OUR SPONSOR
If you’re exploring a text to type tool, this might be a good one to test.
Get more done with one hand
Dictate emails, school notes, and side-hustle updates while you care for your family. Wispr Flow cleans your words and formats lists so you can send without retyping. Try Wispr Flow for parents.

Keeping the “sick” away.
Being sick while traveling is the worse. And today, everyone seems to be sick. If you’re going to be traveling soon (and even if you are not), take a look at these tips to keep yourself as healthy as possible.

TILL NEXT TIME
Thanks for reading my newsletter. If you like it, please:
🫶 Share Care Fully with a friend using this link.
❤️ Plan ahead for National Caregivers Day. This year it is on Friday, February 20th. Email [email protected] if you’d like to plan something special for the caregivers or caregiving employees in your organization.

