You are one of 63 million.

Hi there!

I’m Erna, the author of Care Fully.

My caregiver journey started over 20 years ago, when I was 21 years old. As a newly minted college graduate, my life was just beginning. I had no idea how to deal with the ups, downs, and in-betweens of caregiving for my Mother.

Care Fully is a play on words. The questions I am asked and the ones I still have drive each issue of this newsletter.

We “care fully” by balancing our needs as a caregivers with those we provide care for. My goal is to offer up experiences and information to support your caregiving journey.

This month, I’m doing something different by shining a light on policy and caregivers. Today’s issue starts where I wish someone started with me, not a to-do list, but rather the truth.

Before we talk policy, planning, or what your employer owes you, let’s talk about the sheer scale of today’s challenges. I never had time to stop and reflect, but this is an important moment to do so.

I’m here to help, so think of this newsletter as your abbreviated news reel. The next four issues will give you a clear picture of what is happening with caregiving in our country and what is being done to help caregivers.

If this edition was forwarded to you, please sign up for your own copy here. To spotlight or support caregiving in your company, email [email protected].

Today, we’re chatting about:

  • The crisis that isn’t waiting.

  • Planning your future.

  • Resources to start your planning.

ONE IN TEN US ADULTS ARE FAMILY CAREGIVERS

Why is it so hard to provide care in this country?”   

- Sen. Andy Kim, discussing his father’s Alzheimer’s diagnosis

According to last year’s Caregiving in the US Report, 63 million Americans are family caregivers. That is a 45% increase over the past decade. Three in five caregivers are women. And, one third of caregivers are simultaneously raising children.

Family caregivers are doing a lot of lifting, most of the time without the help needed. As a result, caregiver burnout is a reality as are impacts to health, emotional well-being, finances, and other parts of life.

By 2030, roughly one in five Americans will be over the age of 65. The current paid caregiver workforce is shrinking, while our healthcare work force continues to contract. We are not ready for this.

Reflecting back to the start of my caregiving journey, I was the only one in my peer group caring for an older adult. With family caregivers numbering 63 million in the US alone, being the “only” is one thing caregivers are not.

Aside from the obvious, what do these facts mean?

TIME IS OF THE ESSENCE

If you are reading this, you’re probably someone else’s plan. You show up. You schedule appointments. You connect the dots providers don’t.

Who is planning for you?

I was so consumed by my caregiving journey, the future wasn’t a thought. There was no time for it. Unintentional planning started as my Mother’s condition worsen. Once I got her paperwork under way (health proxy, will, power of attorney, etc.) the thought and eventual action of, “I should do this,” became a reality.

Planning ahead is one of the most significant gifts I can give my family. I’ve seen what happens when there is no plan. I don’t want my children making decisions in a crisis the way I had to.”   

- Helen Medsger, caregiver

Helen Medsger spent three decades in caregiving’s hardest rooms. She watched her father decline into Lewy body dementia without a single legal document in place. Imagine, no power of attorney, no advance directive, nothing.

She fought hospitals, banks, and long-term care facilities for basic authority over his care. She left her job and navigated bureaucratic walls while also grieving.

When her sister was later diagnosed with the same disease, Helen was ready. She completed every form early. She planned with intention. The Caregiving in the US Report tells us 47% of caregivers have begun planning for their own future care. This number is up from 42%

Helen’s experience and my own offer ways in which we can “care fully” in practice. Practicing care for your loved one alongside yourself is the way to stay ahead of things. You want the plan to be in effect, before the crisis hits.

I didn’t make a plan for myself until much later. If you are reading this and fall into that camp, this is your nudge. People who love you deserve the gift of not having to guess. And you deserve to have your wishes and plans honored. Below are a few resources to help.

STARTING YOUR PLAN

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This issue of Care Fully is sponsored by 1440 Media. I don’t know about you, but I’ve definitely been treading lightly when it comes to news these days. I use a few different sources. If you’re looking for a new way to receive news, click below. And, if not, that’s ok, still click. It helps me keep bringing Care Fully to your inbox. Thank you!

A WORD FROM 1440

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BEFORE YOU GO . . .

Forward this newsletter to a fellow caregiver, colleague in HR, or policymaker in your network. The more folks who understand what is at stake and what is possible, the faster we can make change happen.

Until next time,